We had some really great visits with Piper last weekend. One of the interesting things about only being able to visit her on the weekend, is that her progress is easily seen, when contrasted with the previous week. Last weekend was no different. She is getting a little bit bigger and stronger every time we … Continue reading Labor Day weekend with Piper→
I am super excited about the long weekend, for several reasons. First of all, it is looking like more lovely weather on Sunday and Monday. Tomorrow is supposed to be overcast, but that’s ok, because we are going for a really long run in the morning, so it will keep us from overheating. The next … Continue reading Ahhh, three day weekends.→
I get to go to court this afternoon, for Piper. We were hoping that after she was granted SSI, the medicaid would be instant. If that were the case, I wouldn’t have to worry anymore about the first medicaid application being denied. As it stands, we still haven’t heard back from SSI about their medicaid … Continue reading Jumping through more hoops→
We had awesome visits with Piper both Saturday and Sunday. She is noticeably bigger and stronger, than just a couple of months ago. It seems like her new feeding schedule has helped reduce the vomiting a bit, since she has reverted to the G-tube from the GJ-tube. Something that is really cool though, is that … Continue reading Portable Piper→
Reagan and I wanted to make sure that we took full advantage of the remaining warm-weather weekends (the alliteration is for flare). We definitely got our plan off to a banging start this weekend. We took a lot of pictures too, but I haven’t even had a chance to load them up yet, plus I … Continue reading More of the more awesome→
Our Alley at night — ↓ Piper’s doctor called me yesterday to tell me that they switched out her GJ tube for a regular G-tube, again. They said that the GJ tube seemed to be leaking and may have come dislodged. I was surprised that they didn’t need our consent, and that they could do … Continue reading Randomish, type stuff→
Reagan and I have been totally stressing about the funding situation under which Piper went back to Blythedale. I have gone into detail about it in previous posts. Well, I have been leaving messages, since the middle of last week, trying to get a hold of the woman who was working on Piper’s SSI application. … Continue reading At long last→
When we woke up Sunday morning, Reagan decided that she just couldn’t wait a minute longer to see Piper, so we packed up the car early and headed to Westchester County. The difference in the drive up there, from winter to summer is very dramatic. In the winter, the parkways are ugly and depressing. In … Continue reading PJ update→
We had a great visit today with Piper. It seems like she is very content in her new digs. As she is indicating in this picture, she was pretty stoked about getting her bath today. Check here for the rest of the pictures from today.
Yes, this is the same photo that Reagan posted on her blob this morning. Isn’t is a cute one though? I feel like it demonstrates how content Reagan is with the way things went down yesterday. I think it is also cute that you can tell how tuckered out Piper is from the move. Go … Continue reading Mo’ pics of Pipers move.→