Today was a busy day for us. We spent the majority of it running all over the tri-state area to get Piper’s stuff moved. When we arrived at Blythedale will all of her stuff, she was snoozing away. It didn’t take her long to wake up though, and tangle herself up in some funky position … Continue reading Piperooski→
We got Piper all moved in back at Blythedale and everything, today. I’m feeling pretty good about the way this week is coming to an end. Reagan had a girls night tonight, with one of our friends who is moving away. It gave me a chance to get out and skate a bit. It was … Continue reading A second to breathe→
Piper has been doing better and better. Today, her oxygen came down to 35%. She has been getting full feeds and has been super playful. In addition to visibly feeling better, Piper will have one of her favorite nurses for the next couple of days. If she continues at the current pace, it is likely … Continue reading Piper is doing well→
Piper, although clearly still in need of lots of rest and recovery, was acting a lot more like her usual self, yesterday. I took the day off, and Reagan didn’t go into work until 1. So, we were both able to spend a lot of time hanging out with her. It was so fun to … Continue reading PJ Update→
No sooner, had I published the early post about Piper, than I received a call from the nurse practitioner on duty at Wanaque, saying that Piper’s condition had worsened and that they were going to send her to the ER at St. Joe’s in Parsippany NJ. I begged her to do everything that she could … Continue reading Bi-lateral Pneumonia→
Warning: this post contains some negativity. Reagan and I have been trying to maintain a positive outlook regarding Piper’s new home. Of course it is always going to be an adjustment, going to a new place. There is new staff to meet, new procedure, idiosyncrasies etc.. It has been about a month now, and Piper … Continue reading PJ Update→
We had a pretty good weekend, considering that it was supposed to continue to rain all day Saturday. Apparently, mother nature was able to get it all out of her system early that day, because it actually shaped up to be a pretty nice little weekend, weather-wise after Saturday morning. Reagan cut hair in the … Continue reading Weekendities→
Piper has been in her new digs for almost 2 weeks now. She is clearly still getting used to the place. They moved her to a different room, last week. So she now has a roommate that is of a more comparable age. Unfortunately, this week Piper is battling to get her immune system up … Continue reading Piper Update→
I read an article this week that really shook me up. I don’t feel like that happens very often . I guess it was because the subject matter hit so close to home. The piece appeared in GQ this month, titled “Unreachable” and was written by Karl Taro. It is about the author’s adult autistic brother, … Continue reading Thought Provoking→
We visited Piper on our way up to Boston, on Saturday. It seemed like she had settled right into her digs. She had a new crib and everything. She was being very cute and playful. She was a little annoyed at first, since we interrupted her Saturday morning cartoon watching. But overall, she was glad … Continue reading Piper Update→