For the second week in a row, yesterday Piper was bumped back from her scheduled GJ tube procedure. Apparently there was a kid in more dire need of it, and IR could only take on case from the PICU. We aren’t too frustrated about it. Now that CS is full again, there is no real rush to get it done, because it will most likely be a while before they can ship her off anywhere again. It is generally really nice to have her at Columbia. The main reason is because she is so close. It is also nice that she will be there while we are out of town. It gives a lot more peace of mind, knowing that she is already in the ICU if anything should happen, rather than being an ambulance ride away. It does definitely have its drawbacks though. For instance, ICU protocol requires that she always have an IV, even if she probably would be fine with out one. This morning when Reagan and I went to visit her, her IV (one that she had in the same spot for about 4 days) had infiltrated. This means that it had become dislodged from its position in the blood vessel and the IV fluid was going into the surrounding tissue. As a result, her little arm was the size of Popeye’s and she had a fresh new IV in her foot. Another issue is that when we aren’t there playing with her and holding her, no one is. When she is in the ICU, she doesn’t receive any OT or PT, like she does at the rehab facilites. I don’t really know how much physical benefit that she derives from receiving that therapy, but the value of being taken out of the crib and given attention is definitely noted. They are going to try to get her into IR again today for the GJ tube, keep your fingers crossed.