We were able to see Piper in real life, this morning, for the first time in over a week. She definitely looked like she is doing better. It was tough for us to get a real sense of how she is feeling though, since she slept during the entire time that we were there. Her nurse said that she thinks Piper has her days and nights mixed up. I don’t blame you, lil’ Pip. If I had been drugged into a coma like they had you, I probably would have a lot more than my days and nights mixed up. Even though we were kind of bummed that we couldn’t see her awake, it was really really nice to see her, at all.
Reagan and I still aren’t feeling 100% better. But we just threw on some face masks and called it “good enough.” Although, Reagan wouldn’t wear her’s over her nose– hahaha.
Piper’s A-line is now out. So, the only remaining inter venous line is her center line. She is still getting a pretty stiff cocktail of meds through it, but in each case the dose is much smaller. Her nurse also told us that they are going to try to get her completely off of the nitric this week, as well as the morphine. She didn’t say anything about the NG tube (the one going into her nose), but hopefully that will be coming out soon, too. I’m sure that it drives Piper completely crazy. Such a tough little girl.
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