Piper news

Piper was in good form this weekend, as usual. She had developed a mysterious rash Friday night. But it didn’t seem to be slowing her down at all. By Sunday it was visibly much better. Reagan’s friend Amanda was in town visiting this weekend. We all had a fun time hanging out. It was her first time meeting Piper. On Sunday, we were able to speak to her nurse, who had tried Piper out on the trache collar last weekend. She said that Although Piper didn’t respond well last week, they would be giving it another go today. Hopefully it goes a little better this time.

Amanda holding Piper

Piper rocking her “tape shirt,” playing with mom’s beads